{"schema":"https://ver.cy/schemas/card/1.0.0","id":"vr.tr.epilepsy","code":"thing-q41571","url":"https://ver.cy/models/thing/q41571/","name":"epilepsy","alternateNames":["dysembryoplastic neuroepithelial tumour","anti-NMDA receptor encephalitis","alternative psychosis","Nocturnal epilepsy","focal nocturnal epileptiform activity","Ictal bradycardia","generalized epilepsy","focal epilepsy","intractable epilepsy","complex partial seizure","atonic seizure","post-traumatic epilepsy"],"kind":"thing","status":"published","version":"0.2.0-wave.1","language":"en","classifiers":{"family":"Thing Registry","category":"Cross-cutting context","entryKind":"thing","plane":"XCT","domain":["XCT.STA"],"industry":[],"navPath":"","tags":[],"facets":{}},"whatItIs":"A neurological condition characterised by a tendency to have recurrent, unprovoked seizures caused by abnormal electrical activity in the brain; there are many types and causes, and most people can control seizures with treatment.","purpose":"Let an agent give neutral, non-diagnostic information about epilepsy, seizure first aid first, and route people to health professionals and support organisations.","scope":{"in":[],"out":[],"boundaries":[]},"distinguishingFeatures":["Recurrent unprovoked seizures","Many types and causes","Usually treatable","Often stigmatised"],"structure":{"bundles":[{"id":"first-aid","name":"First aid","description":"During a seizure.","layers":[{"id":"during","name":"During","description":"Keep safe.","findings":[{"id":"during-finding","name":"During","description":"Seizure first aid.","questions":[{"text":"Is the person kept safe from injury, not restrained, with nothing put in their mouth?","kind":"action"},{"text":"Is the time the seizure started noted?","kind":"action"}]}]},{"id":"emergency","name":"Emergency","description":"When to call.","findings":[{"id":"emergency-finding","name":"Emergency","description":"When to call for help.","questions":[{"text":"Has the seizure lasted more than five minutes, or is it the first seizure, or is there injury or breathing difficulty?","kind":"boundary"},{"text":"Should emergency services be called now?","kind":"action"}]}]}]},{"id":"care","name":"Care","description":"Diagnosis and treatment.","layers":[{"id":"assessment","name":"Assessment","description":"Specialist.","findings":[{"id":"assessment-finding","name":"Assessment","description":"Assessment.","questions":[{"text":"How can someone get assessed after a seizure?","kind":"action"},{"text":"What tests might be used?","kind":"definition"}]}]},{"id":"treatment","name":"Treatment","description":"Options.","findings":[{"id":"treatment-finding","name":"Treatment","description":"Treatment.","questions":[{"text":"Which treatments do clinical guidelines describe?","kind":"provenance"},{"text":"Who decides with the patient?","kind":"boundary"}]}]}]},{"id":"living","name":"Living with epilepsy","description":"Daily life.","layers":[{"id":"safety","name":"Safety","description":"Everyday risks.","findings":[{"id":"safety-finding","name":"Safety","description":"Everyday safety.","questions":[{"text":"What everyday safety measures do epilepsy organisations suggest?","kind":"provenance"},{"text":"Are there rules on driving?","kind":"provenance"}]}]},{"id":"rights","name":"Rights","description":"Work and school.","findings":[{"id":"rights-finding","name":"Rights","description":"Rights.","questions":[{"text":"What adjustments at work or school may be available?","kind":"boundary"},{"text":"Who can advise?","kind":"action"}]}]}]},{"id":"information","name":"Information","description":"Understanding.","layers":[{"id":"facts","name":"Facts","description":"Reliable information.","findings":[{"id":"facts-finding","name":"Facts","description":"General information.","questions":[{"text":"What do reliable health sources say about epilepsy?","kind":"provenance"},{"text":"Which myths are common?","kind":"boundary"}]}]},{"id":"language","name":"Language","description":"Respect.","findings":[{"id":"language-finding","name":"Language","description":"Respectful language.","questions":[{"text":"Is respectful, person-first language used?","kind":"boundary"},{"text":"Is control with treatment described accurately?","kind":"boundary"}]}]}]}]},"agentConduct":{"may":["Explain epilepsy and seizure first aid from recognised medical guidance.","Remind a person of medicines and appointments on their request.","Call emergency services for a suspected seizure emergency without waiting for prior human approval."],"mustNot":["Diagnose epilepsy or change anti-seizure medicines without a clinician.","Put anything in a seizing person's mouth or advise restraining them.","Disclose a person's epilepsy to employers or others without consent.","Display rapidly flashing content without warnings."],"requiresHuman":["Decisions about driving or work that depend on seizure control require human involvement."]},"ethics":{"considerations":["People with epilepsy face stigma and discrimination at work and in daily life.","Prolonged seizures are emergencies; wrong first aid causes harm."],"affectedParties":["People with epilepsy","Families and carers","Bystanders giving first aid"]},"owners":{"steward":"The patient, with their clinicians.","roles":[],"masterSystems":[]},"relations":[{"target":"Q576349","type":"parent","note":"registry parent class"},{"target":"neurological condition","type":"related","note":"category"},{"target":"brain","type":"related","note":"organ"},{"target":"neurologist","type":"related","note":"professional"},{"target":"epilepsy organisations","type":"related","note":"support"}],"interaction":{"identity":{"applicability":"required","items":["Vercy registry: vr.tr.epilepsy","Wikidata: Q41571 (https://www.wikidata.org/wiki/Q41571)","ICD-11: 8A60-8A6Z epilepsy or seizures"]},"properties":{"applicability":"not-applicable","items":[]},"recognition":{"applicability":"optional","items":["Seizure types such as focal or generalised","Diagnosed with history, EEG and imaging","A single seizure is not always epilepsy","Seizures vary: brief absences, unusual sensations or movements, or convulsions with loss of consciousness."]},"capabilities":{"applicability":"required","items":["give seizure first aid","call emergency services when needed","seek specialist assessment","find epilepsy support organisations"]},"hazards":{"applicability":"required","items":["Restraining a person or putting objects in their mouth during a seizure","Not calling for help for a long seizure","Stopping medicines without medical advice","Stigmatising language"]},"interfaces":{"applicability":"required","items":["ILAE classification","NICE guideline NG217 epilepsies","Driving licence rules for epilepsy"]},"context":{"applicability":"required","items":["A recognised medical condition diagnosed and treated by health professionals.","focal epilepsies","generalised epilepsies","childhood epilepsy syndromes","epilepsy with sleep-related seizures","drug-resistant epilepsy"]}},"sources":[{"title":"Wikidata item Q41571: epilepsy","url":"https://www.wikidata.org/wiki/Q41571","note":"identity and sense of the item"},{"title":"Wikipedia: Epilepsy","url":"https://en.wikipedia.org/wiki/Epilepsy","note":"general description of the item"}],"openQuestions":["Should seizure types be separate entries?","How should emergency numbers be localised?","How should driving rules be localised?"],"resources":{"spec":"/models/things/publications/thing-q41571/spec.json"},"provenance":{"origin":"thing registry research (pass 2)","builtFrom":["models/things/publications/thing-q41571/spec.json"],"providers":["Claude"],"researchStatus":"unreviewed","generatedAt":"2026-09-11T08:17:17Z","builder":"tools/build_cards.py@1.0.0"},"completeness":{"sections":{"classifiers":"filled","whatItIs":"filled","purpose":"filled","distinguishingFeatures":"filled","structure":"filled","agentConduct":"filled","ethics":"filled","owners":"filled","relations":"filled","interaction.identity":"filled","interaction.properties":"not-applicable","interaction.recognition":"filled","interaction.capabilities":"filled","interaction.hazards":"filled","interaction.interfaces":"filled","interaction.context":"filled","sources":"filled"},"notes":{"_gate":"Published through the thing publication gate 1.0 on 2026-10-07T10:10:30+00:00: completeness 1.00; sense: Wikidata description; 2 live sources; review by codex: pass","interaction.properties":"Plane XCT: no invented physical properties."},"score":1.0}}