{"schema":"https://ver.cy/schemas/card/1.0.0","id":"vr.tr.paediatric-oncology","code":"thing-q5097977","url":"https://ver.cy/models/thing/q5097977/","name":"paediatric oncology","alternateNames":["rare childhood malignant neoplasm","pediatric myxoid chondrosarcoma","childhood soft tissue sarcoma","childhood malignant kidney neoplasm","malignant childhood germ cell neoplasm","ependymoma","childhood choroid plexus cancer","childhood spinal cord tumor","childhood central nervous system primitive neuroectodermal neoplasm","pediatric mesenchymal chondrosarcoma","childhood malignant mesenchymoma","childhood malignant central nervous system neoplasm"],"kind":"thing","status":"published","version":"0.2.0-wave.2","language":"en","classifiers":{"family":"Thing Registry","category":"Cross-cutting context","entryKind":"thing","plane":"XCT","domain":["XCT.STA"],"industry":[],"navPath":"","tags":[],"facets":{}},"whatItIs":"The branch of medicine concerned with cancers in children and adolescents, including leukaemias, brain tumours such as ependymoma, kidney tumours, soft tissue sarcomas, germ cell tumours, bone tumours and rare childhood malignancies, which differ from adult cancers in types, biology and treatment; paediatric oncology is delivered by specialist teams in dedicated centres with high cure rates for many cancers, supported by clinical trials and survivorship care, and this entry gives general information only.","purpose":"Let an agent explain paediatric oncology and childhood cancers in general terms with attribution, describe diagnosis, treatment and survivorship as documented by medical bodies, point families to support, and route personal questions to clinicians.","scope":{"in":[],"out":[],"boundaries":[]},"distinguishingFeatures":["Childhood cancer types","Specialist centres","High cure rates for many","Survivorship care"],"structure":{"bundles":[{"id":"understand","name":"Understand","description":"Childhood cancers.","layers":[{"id":"types","name":"Types","description":"Types and differences.","findings":[{"id":"types-finding","name":"Types","description":"Types.","questions":[{"text":"Which cancers occur in children, and how do they differ from adult cancers in biology and treatment, according to medical sources?","kind":"provenance"},{"text":"Is the user asking about a specific child, which needs the treating team?","kind":"boundary"}]}]},{"id":"causes","name":"Causes","description":"Causes and risk.","findings":[{"id":"causes-finding","name":"Causes","description":"Causes.","questions":[{"text":"What is known about the causes of childhood cancers, including genetic syndromes?","kind":"provenance"},{"text":"Which entry fits a specific cancer?","kind":"action"}]}]}]},{"id":"care","name":"Care","description":"Diagnosis and treatment.","layers":[{"id":"diagnosis","name":"Diagnosis","description":"Signs and diagnosis.","findings":[{"id":"diagnosis-finding","name":"Diagnosis","description":"Diagnosis.","questions":[{"text":"What signs prompt investigation, and how are childhood cancers diagnosed and staged, in general terms?","kind":"provenance"},{"text":"Are urgent symptoms present, requiring prompt care?","kind":"boundary"}]}]},{"id":"treatment","name":"Treatment","description":"Treatment and trials.","findings":[{"id":"treatment-finding","name":"Treatment","description":"Treatment.","questions":[{"text":"How are childhood cancers treated in specialist centres, and what role do clinical trials play?","kind":"provenance"},{"text":"Which entry fits a specific treatment?","kind":"action"}]}]}]},{"id":"support","name":"Support","description":"Families and survivorship.","layers":[{"id":"families","name":"Families","description":"Support for families.","findings":[{"id":"families-finding","name":"Families","description":"Families.","questions":[{"text":"What support exists for children and families, including psychosocial, educational and financial support?","kind":"provenance"},{"text":"Is a family in acute distress, needing crisis support?","kind":"boundary"}]}]},{"id":"survivorship","name":"Survivorship","description":"Survivorship.","findings":[{"id":"survivorship-finding","name":"Survivorship","description":"Survivorship.","questions":[{"text":"What is documented about long-term effects and survivorship care after childhood cancer?","kind":"provenance"},{"text":"Which entry fits cancer survivorship?","kind":"action"}]}]}]},{"id":"learn","name":"Learn","description":"Research and global context.","layers":[{"id":"research","name":"Research","description":"Research.","findings":[{"id":"research-finding","name":"Research","description":"Research.","questions":[{"text":"What research directions and cooperative trial groups exist in paediatric oncology?","kind":"provenance"},{"text":"Which references are standard?","kind":"provenance"}]}]},{"id":"global","name":"Global","description":"Global inequities.","findings":[{"id":"global-finding","name":"Global","description":"Global.","questions":[{"text":"How do outcomes differ across countries, and what global initiatives address childhood cancer?","kind":"provenance"},{"text":"Which misconceptions arise?","kind":"provenance"}]}]}]}]},"agentConduct":{"may":["Explain childhood cancers and how care is organised, with sources such as specialist bodies.","Help families find specialist centres, support organisations and trial registries."],"mustNot":["Give personal diagnosis, prognosis or treatment advice for a specific child.","Promote unproven cures or suggest delaying standard treatment.","Blame parents for causing a child's cancer without evidence.","Share a child's health information without the family's consent."],"requiresHuman":["Any decision about a child's treatment or enrolment in a clinical trial."]},"ethics":{"considerations":["Children cannot consent for themselves; families face decisions under great stress.","Survival depends heavily on access to specialist centres, which is unequal across countries."],"affectedParties":["Children with cancer","Parents and siblings","Families in low-resource settings"]},"owners":{"steward":"Nobody owns the field; specialist centres and their clinicians answer for care.","roles":[],"masterSystems":["Childhood cancer registries","Clinical trial registries"]},"relations":[{"target":"Q12078","type":"parent","note":"registry parent class"},{"target":"Q28501387","type":"parent","note":"registry parent class"},{"target":"cancer","type":"related","note":"category"},{"target":"childhood neoplasm","type":"related","note":"category"},{"target":"leukemia","type":"related","note":"the most common childhood cancer"},{"target":"girl","type":"related","note":"child patients"}],"interaction":{"identity":{"applicability":"required","items":["Vercy registry: vr.tr.paediatric-oncology","Wikidata: Q5097977 (https://www.wikidata.org/wiki/Q5097977)"]},"properties":{"applicability":"not-applicable","items":[]},"recognition":{"applicability":"optional","items":["Cancer care for children and adolescents","Distinct cancer types from adults","Adult oncology treats different cancer patterns","Not physical; a medical specialty."]},"capabilities":{"applicability":"required","items":["explain childhood cancers generally","describe diagnosis and treatment","point to support","route personal questions"]},"hazards":{"applicability":"required","items":["Agents giving personal medical advice","Misinformation about causes and cures","Inequities in access to care"]},"interfaces":{"applicability":"required","items":["Clinical guidelines and treatment protocols","Clinical trial regulation for children","Standards for paediatric cancer centres"]},"context":{"applicability":"required","items":["Cancer medicine for children.","childhood leukaemias","brain and spinal tumours such as ependymoma","kidney and liver tumours","soft tissue and bone sarcomas","germ cell and rare childhood tumours"]}},"sources":[{"title":"Wikidata item Q5097977: paediatric oncology","url":"https://www.wikidata.org/wiki/Q5097977","note":"identity and sense of the item"},{"title":"Wikipedia: Childhood cancer","url":"https://en.wikipedia.org/wiki/Childhood_cancer","note":"general description of the item"}],"openQuestions":["Should each childhood cancer be a separate entry?","How should guidelines be linked?","How should family support organisations be linked?"],"resources":{"spec":"/models/things/publications/thing-q5097977/spec.json"},"provenance":{"origin":"thing registry research (pass 2)","builtFrom":["models/things/publications/thing-q5097977/spec.json"],"providers":["Claude"],"researchStatus":"unreviewed","generatedAt":"2026-09-12T01:42:35Z","builder":"tools/build_cards.py@1.0.0"},"completeness":{"sections":{"classifiers":"filled","whatItIs":"filled","purpose":"filled","distinguishingFeatures":"filled","structure":"filled","agentConduct":"filled","ethics":"filled","owners":"filled","relations":"filled","interaction.identity":"filled","interaction.properties":"not-applicable","interaction.recognition":"filled","interaction.capabilities":"filled","interaction.hazards":"filled","interaction.interfaces":"filled","interaction.context":"filled","sources":"filled"},"notes":{"_gate":"Published through the thing publication gate 1.0 on 2026-10-09T07:30:02+00:00: completeness 1.00; sense: Wikidata description; 2 live sources; review by codex: pass","interaction.properties":"Plane XCT: no invented physical properties."},"score":1.0}}