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Research draft

patient

vr.tr.patient · PHY.LIV

Let an agent explain the patient role and patient rights, describe patient experience and participation in care, support navigating health services in general terms, and route personal medical questions to clinicians.

Thing Registry Physical world and living systems

Research draft, second pass

A second pass drafted this model: the structure a model of this thing needs, and what is known about it in the world. The line under this one says how the second half was obtained - researched against sources, or recalled without web access, in which case nothing here was read anywhere and every claim is a lead to verify. Unreviewed either way.

written by Claude from model knowledge without web access - no source was read, every claim is a lead to verify

Researched by: Claude

Purpose and description

Let an agent explain the patient role and patient rights, describe patient experience and participation in care, support navigating health services in general terms, and route personal medical questions to clinicians.

A person receiving or registered to receive medical care or treatment from a health professional or service, whether ill, injured, pregnant, undergoing screening or attending for preventive care, in settings from primary care to hospitals and long-term care, and in categories such as inpatients, outpatients, symptomatic patients and those with particular conditions; patients hold rights to information, consent, confidentiality and dignity, and the term is complemented by terms such as client and service user in some contexts.

What it is for: People receiving health care.

It can be explain the role and rights; describe experience and participation; support navigating services; route personal questions.

Distinguishing features

Care relation

Rights framework

Varied settings

Participation in decisions

What it looks like

Not physical; a role in health care.

How it is recognised

Receives care from a health professional or service

Rights to consent and confidentiality

A client of social services or a customer of a pharmacy has a different relation

Related models

is a kind of - category

sick person

is related to - a care relation

nurse-patient relation

is related to - a care relation

doctor-patient relation

is related to - a care setting

hospice

In practice

Families and kinds

inpatients and outpatients

patients with chronic conditions

patients in long-term and palliative care

paediatric and adolescent patients

patients in research

Standards and regulation

Patient rights charters and law

Consent and confidentiality law

Research ethics for patient participation

Failure modes and hazards

Agents acting as clinicians

Stigmatising labels

Breach of confidentiality

Also called

AIDS patientterminally ill personhospitalized adolescentinstitutionalized adolescentsymptomatic patientstretcher-bound patientmelanoma patientoncologic patientkattaidiabetic patientcardiac patientleprosy patientstoma patienthemodialysis patientneurological patientnursing home residentindex casequaternary preventionÜberliegerpsychiatric patienttransplant recipientoutpatientAbortion Applicantsmental health consumerno-show patientsinpatientshomebound personE-patient

Where this came from

wikidata · CC0 1.0

Drafted structure

Bundle to layer to finding to question, as the second pass will find it: 4 bundles · 8 layers · 8 findings · 16 questions.

Understand The patient role.

Health care.

Role

Role and terms.

Role

Role.

  1. What does it mean to be a patient, and how do terms such as client and service user differ? definition
  2. Which care setting is meant? boundary

Rights

Patient rights.

Rights

Rights.

  1. What rights to information, consent, confidentiality, dignity and complaint do patients hold here, according to law and charters? provenance
  2. Is legal advice needed from a professional? boundary
Navigate Navigating care.

Practice.

Services

Using services.

Services

Services.

  1. How can patients access, prepare for and follow up appointments and treatments, in general terms? action
  2. Is the user asking about their own condition, which needs their clinician? boundary

Participate

Shared decision-making.

Participate

Participation.

  1. How can patients participate in decisions about their care, and what is shared decision-making? provenance
  2. Which entry fits health literacy? action
Experience Experience and support.

Care.

Experience

Patient experience.

Experience

Experience.

  1. How is patient experience measured and improved by health services? provenance
  2. Which entry fits quality of care? action

Support

Support and advocacy.

Support

Support.

  1. What patient organisations, advocates and support services exist? provenance
  2. Is someone in crisis, needing urgent help? boundary
Learn History and research.

Education.

History

History of the patient role.

History

History.

  1. How has the patient role changed from paternalism to partnership, according to historians and ethicists? provenance
  2. Which references are standard? provenance

Research

Patients in research.

Research

Research.

  1. How are patients involved in research as participants and partners, and what ethics apply? provenance
  2. Which misconceptions arise? provenance

What the second pass must settle

  • Should patient rights be a separate entry?
  • How should health services be linked?
  • How should patient organisations be linked?