{ "model": { "rank": 5876, "code": "thing-q189561", "model_id": "vr.tr.narcolepsy", "name": "narcolepsy", "purpose": "Let an agent explain narcolepsy in general terms, relay types, mechanisms, diagnosis, management and driving considerations from sleep medicine sources, point people to sleep specialists and advise against driving when sleepy, describe the named forms, and distinguish narcolepsy from idiopathic hypersomnia, sleep apnoea, epilepsy and insufficient sleep, without diagnosing individuals.", "family": "Thing Registry", "category": "Cross-cutting context", "status": "research-draft", "kind": "thing", "plane": "XCT", "domain": "XCT.STA", "industry": "", "version": "", "url": "/models/thing/q189561/", "tier": 2, "score": 64, "payload": { "layer": "wikidata", "aliases": [ "cataplexy", "narcolepsy without cataplexy", "narcolepsy-cataplexy syndrome" ], "aliasCount": 3, "merged": 3, "knownIn": 64, "facets": null, "markers": [], "lexicalClass": "", "senseRank": null, "alsoRegisteredAs": "vr.tr.narcolepsy", "source": { "dataset": "wikidata", "item": "Q189561", "url": "https://www.wikidata.org/wiki/Q189561", "license": "CC0 1.0" } }, "research": { "vercy": "1.0-draft", "publication": { "status": "research-draft", "adjudicationStatus": "unreviewed", "publishableCanonical": false, "generatedAt": "2026-09-13T22:29:46Z", "providers": [ "Claude" ], "breadth": "written by Claude from model knowledge without web access - no source was read, every claim is a lead to verify", "pass": 2, "wave": 4, "engine": "claude" }, "metaModel": { "id": "THING-Q189561", "registryId": "vr.tr.narcolepsy", "name": "narcolepsy", "version": "0.2.0-wave.4", "entryKind": "thing", "family": "Thing Registry", "domain": [ "XCT.STA" ], "status": "research-draft" }, "canonicalUrl": "https://ver.cy/models/thing/q189561/", "model": { "registry_id": "vr.tr.narcolepsy", "name": "narcolepsy", "purpose": "Let an agent explain narcolepsy in general terms, relay types, mechanisms, diagnosis, management and driving considerations from sleep medicine sources, point people to sleep specialists and advise against driving when sleepy, describe the named forms, and distinguish narcolepsy from idiopathic hypersomnia, sleep apnoea, epilepsy and insufficient sleep, without diagnosing individuals.", "definition": "A chronic neurological sleep disorder characterised by excessive daytime sleepiness and disrupted regulation of sleep and wakefulness, classified as narcolepsy type 1, with cataplexy, sudden muscle weakness triggered by emotions such as laughter, and usually low hypocretin or orexin levels linked to loss of hypothalamic neurons, and narcolepsy type 2, without cataplexy; other symptoms include sleep paralysis, hypnagogic hallucinations and fragmented night sleep. It is diagnosed with sleep studies including the multiple sleep latency test, managed with scheduled naps and medicines, and affects driving safety, and an increase in cases followed the Pandemrix H1N1 vaccine in some European countries in 2009 to 2010, as studies reported.", "what_it_is_for": "Not applicable; a sleep disorder.", "affordances": [ "explain types and mechanisms", "relay diagnosis and management in general terms", "describe cataplexy", "relay driving safety" ], "distinguishing_features": [ "Excessive daytime sleepiness", "Cataplexy in type 1", "Hypocretin loss", "REM sleep intrusions" ], "appearance": "Not visible; noticed as sudden sleep episodes or collapses of muscle tone with emotion.", "visual_identification": [ "Chronic disorder of sleep-wake regulation", "Cataplexy, narcolepsy without cataplexy, narcolepsy-cataplexy syndrome, narcolepsy type 1, narcolepsy type 2", "Idiopathic hypersomnia lacks REM features; sleep apnoea involves breathing pauses; epilepsy involves seizures; insufficient sleep resolves with rest" ], "physical_properties": [ { "quantity": "prevalence", "typical_range": "about 25-50 per 100,000", "unit": "people", "note": "estimates vary" }, { "quantity": "hypocretin discovery link", "typical_range": "1999-2000", "unit": "years", "note": "" }, { "quantity": "Pandemrix association", "typical_range": "2009-2010", "unit": "years", "note": "reported in some countries" } ], "families_and_kinds": [ "narcolepsy type 1", "narcolepsy type 2", "secondary narcolepsy" ], "related_models": [ { "relation": "is a kind of", "target": "hypersomnia", "why": "in registry terms" }, { "relation": "involves", "target": "orexin", "why": "" }, { "relation": "includes", "target": "cataplexy", "why": "" }, { "relation": "is contrasted with", "target": "idiopathic hypersomnia", "why": "" } ], "identifiers": [], "standards_and_regulation": [ "ICSD-3 diagnostic criteria", "Driving licence medical rules", "Disability accommodation laws" ], "failure_modes_and_hazards": [ "Driving while sleepy", "Mistaking cataplexy for seizures or fainting", "Stigma about laziness" ], "in_scope": [], "out_of_scope": [], "characteristics": [] }, "sources": [], "structure": { "bundles": [ { "id": "understand", "name": "Understand", "description": "What narcolepsy is.", "rationale": "Attribution.", "layers": [ { "id": "definition", "name": "Definition", "description": "Definition.", "findings": [ { "id": "definition-finding", "name": "Definition", "description": "Definition.", "questions": [ { "text": "Is someone falling asleep while driving or in danger, in which case stop safely and seek medical advice before driving again?", "kind": "boundary" }, { "text": "What is narcolepsy, and how does it differ from idiopathic hypersomnia, sleep apnoea, epilepsy and insufficient sleep?", "kind": "definition" } ] } ] }, { "id": "forms", "name": "Forms", "description": "Named forms.", "findings": [ { "id": "forms-finding", "name": "Forms", "description": "Forms.", "questions": [ { "text": "What are cataplexy and narcolepsy with and without cataplexy?", "kind": "definition" }, { "text": "Which entry fits the specific form?", "kind": "action" } ] } ] } ] }, { "id": "science", "name": "Science", "description": "Mechanisms.", "rationale": "Science.", "layers": [ { "id": "orexin", "name": "Orexin", "description": "Orexin loss.", "findings": [ { "id": "orexin-finding", "name": "Orexin", "description": "Orexin.", "questions": [ { "text": "How does loss of hypocretin neurons cause narcolepsy type 1?", "kind": "provenance" }, { "text": "Which references are standard?", "kind": "provenance" } ] } ] }, { "id": "immune", "name": "Immune", "description": "Autoimmune hypotheses.", "findings": [ { "id": "immune-finding", "name": "Immune", "description": "Immune.", "questions": [ { "text": "What evidence links narcolepsy to autoimmunity, HLA genes and Pandemrix, with findings attributed?", "kind": "provenance" }, { "text": "Which sources are cited?", "kind": "provenance" } ] } ] } ] }, { "id": "care", "name": "Care", "description": "Diagnosis and management.", "rationale": "Regulation.", "layers": [ { "id": "diagnosis", "name": "Diagnosis", "description": "Sleep studies.", "findings": [ { "id": "diagnosis-finding", "name": "Diagnosis", "description": "Diagnosis.", "questions": [ { "text": "How do polysomnography and the multiple sleep latency test support diagnosis?", "kind": "provenance" }, { "text": "Which entry fits multiple sleep latency test?", "kind": "action" } ] } ] }, { "id": "treatment", "name": "Treatment", "description": "Management.", "findings": [ { "id": "treatment-finding", "name": "Treatment", "description": "Treatment.", "questions": [ { "text": "What approaches such as scheduled naps and medicines are used, in general terms?", "kind": "provenance" }, { "text": "Which entry fits sleep medicine?", "kind": "action" } ] } ] } ] }, { "id": "context", "name": "Context", "description": "Daily life.", "rationale": "Context.", "layers": [ { "id": "driving", "name": "Driving", "description": "Driving rules.", "findings": [ { "id": "driving-finding", "name": "Driving", "description": "Driving.", "questions": [ { "text": "What do licensing authorities require of drivers with narcolepsy?", "kind": "provenance" }, { "text": "Is the information current for the country?", "kind": "boundary" } ] } ] }, { "id": "stigma", "name": "Stigma", "description": "Stigma and support.", "findings": [ { "id": "stigma-finding", "name": "Stigma", "description": "Stigma.", "questions": [ { "text": "How do patient groups address misconceptions about narcolepsy?", "kind": "provenance" }, { "text": "Which entry fits Narcolepsy UK?", "kind": "action" } ] } ] } ] } ] }, "openQuestions": [ "Should cataplexy be a separate entry?", "How should sleep medicine guidelines be linked?", "How should the Pandemrix findings be presented?" ], "statistics": { "bundles": 4, "layers": 8, "findings": 8, "questions": 16 } }, "draft": { "generator": "vr.draft.v3", "status": "draft-generated", "researched": false, "archetype": "abstract concept", "method": "Written from the archetype playbook - what this kind of thing needs beyond identity and provenance - and from the structure that recurred across 6,333 models already researched by two engines. Applied to this entry by rule. No source was read for this thing and no claim here is researched. This entry carries no facets of its own, so they were inferred from its domain - a guess about a whole domain applied to one thing.", "facetsInferred": true, "nextPass": "A researcher replaces this draft with a sourced specification. Treat every sentence below as a proposal to argue with.", "purpose": "Give an agent a durable, checkable way to recognise a narcolepsy, record what state it is in, and decide what may be done with it.", "whatItIs": "Let an agent explain narcolepsy in general terms, relay types, mechanisms, diagnosis, management and driving considerations from sleep medicine sources, point people to sleep specialists and advise against driving when sleepy, describe the named forms, and distinguish narcolepsy from idiopathic hypersomnia, sleep apnoea, epilepsy and insufficient sleep, without diagnosing individuals.", "characteristics": { "substance": "abstract", "origin": "conceptual", "agency": "inert" }, "whatYouCanDoWithIt": [ "observed and measured" ], "distinguishingFeatures": [ "Names folded into this entry, which a task may need to split apart again: cataplexy, narcolepsy without cataplexy, narcolepsy-cataplexy syndrome.", "3 finer distinctions are held as aliases rather than separate entries, because telling them apart needs a task that asks for it.", "Described in 64 Wikipedia languages, which is a measure of how widely the thing is known, not of how important it is." ], "openQuestionsForResearch": [ "Which of the bundles below does a real task actually need, and which are ceremony?", "What does this thing have that the facets do not capture at all?", "Which neighbouring kind is most often confused with a narcolepsy, and on what evidence are they told apart?" ], "whatItIsMadeOf": "an abstraction with no physical instance", "physicalCharacter": [ "Does nothing on its own; everything it does, something else did to it.", "These come from the domain this entry sits in rather than from the entry itself, so treat them as a first guess about the whole domain applied to one thing." ], "whatCanBeDoneWithIt": [ "observe it, measure it, record its state" ], "howItIsRecognised": [ "Nothing to see. What is recognised is an instance of it, and which instances count is exactly what is argued about." ], "relatedModels": [ { "relation": "covers", "note": "Finer kinds folded into this entry because telling them apart needs a task that asks for it. Each is a model waiting to be split out when one does.", "targets": [ "cataplexy", "narcolepsy without cataplexy", "narcolepsy-cataplexy syndrome" ] } ], "standing": "Described in 64 Wikipedia languages, which measures how widely it is written about rather than how important or how common it is. 3 finer distinctions are held inside this entry as names rather than as separate models.", "structure": { "bundles": [ { "id": "identity-and-classification", "name": "Identity, naming and classification", "description": "How an agent tells one narcolepsy from another, and a narcolepsy from things that resemble it.", "rationale": "Recognition comes before every other claim. Without stable identity nothing else in the model can be trusted to be about the same thing twice.", "layers": [ { "id": "naming-and-identifiers", "name": "Names and identifiers", "description": "The names this thing goes by and the identifiers that survive translation and time.", "findings": [ { "id": "preferred-name-and-aliases", "name": "Preferred name, aliases and local names", "description": "Which name to use, which names mean the same thing, and which merely sound similar.", "questions": [ { "id": "preferred-name-and-aliases-q01", "text": "What identifies and describes the name of a narcolepsy, and in what units or vocabulary?", "kind": "definition", "answer_data": [ "identifiers", "types and classes", "values with units", "explicit unknowns" ] }, { "id": "preferred-name-and-aliases-q02", "text": "Who or what asserted this about the name of a narcolepsy, by which method, and when was it true?", "kind": "provenance", "answer_data": [ "authority", "method", "evidence", "event time", "knowledge time" ] }, { "id": "preferred-name-and-aliases-q03", "text": "What may an agent decide or do once the name of a narcolepsy is known, and what must it refuse?", "kind": "action", "answer_data": [ "permitted actions", "preconditions", "refusals", "escalation" ] } ] }, { "id": "stable-identifiers", "name": "Stable identifiers and external keys", "description": "Identifiers that keep pointing at this kind of thing across systems and languages.", "questions": [ { "id": "stable-identifiers-q01", "text": "What identifies and describes an identifier for a narcolepsy, and in what units or vocabulary?", "kind": "definition", "answer_data": [ "identifiers", "types and classes", "values with units", "explicit unknowns" ] }, { "id": "stable-identifiers-q02", "text": "Who or what asserted this about an identifier for a narcolepsy, by which method, and when was it true?", "kind": "provenance", "answer_data": [ "authority", "method", "evidence", "event time", "knowledge time" ] }, { "id": "stable-identifiers-q03", "text": "What may an agent decide or do once an identifier for a narcolepsy is known, and what must it refuse?", "kind": "action", "answer_data": [ "permitted actions", "preconditions", "refusals", "escalation" ] } ] } ] }, { "id": "classification-and-granularity", "name": "Classification and granularity", "description": "Where a narcolepsy sits among kinds, and how finely a task needs to cut it.", "findings": [ { "id": "kind-and-parents", "name": "Kind, parents and neighbouring kinds", "description": "The classes this thing belongs to and the ones it is next to.", "questions": [ { "id": "kind-and-parents-q01", "text": "What identifies and describes the kind of a narcolepsy, and in what units or vocabulary?", "kind": "definition", "answer_data": [ "identifiers", "types and classes", "values with units", "explicit unknowns" ] }, { "id": "kind-and-parents-q02", "text": "Who or what asserted this about the kind of a narcolepsy, by which method, and when was it true?", "kind": "provenance", "answer_data": [ "authority", "method", "evidence", "event time", "knowledge time" ] }, { "id": "kind-and-parents-q03", "text": "What may an agent decide or do once the kind of a narcolepsy is known, and what must it refuse?", "kind": "action", "answer_data": [ "permitted actions", "preconditions", "refusals", "escalation" ] } ] }, { "id": "distinguishing-features", "name": "Distinguishing features", "description": "What separates a narcolepsy from the things most often confused with it.", "questions": [ { "id": "distinguishing-features-q01", "text": "What identifies and describes what distinguishes a narcolepsy, and in what units or vocabulary?", "kind": "definition", "answer_data": [ "identifiers", "types and classes", "values with units", "explicit unknowns" ] }, { "id": "distinguishing-features-q02", "text": "Who or what asserted this about what distinguishes a narcolepsy, by which method, and when was it true?", "kind": "provenance", "answer_data": [ "authority", "method", "evidence", "event time", "knowledge time" ] }, { "id": "distinguishing-features-q03", "text": "What may an agent decide or do once what distinguishes a narcolepsy is known, and what must it refuse?", "kind": "action", "answer_data": [ "permitted actions", "preconditions", "refusals", "escalation" ] } ] } ] } ] }, { "id": "state-and-lifecycle", "name": "State and lifecycle", "description": "The states a narcolepsy passes through and the events that move it between them.", "rationale": "Most decisions about a thing depend on what state it is in now, which is a claim with a time on it, not a property.", "layers": [ { "id": "lifecycle-stages", "name": "Lifecycle stages", "description": "From coming into existence to ceasing to be one of these.", "findings": [ { "id": "stages-and-transitions", "name": "Stages and transitions", "description": "The stages worth naming and what moves a narcolepsy between them.", "questions": [ { "id": "stages-and-transitions-q01", "text": "What identifies and describes the lifecycle of a narcolepsy, and in what units or vocabulary?", "kind": "definition", "answer_data": [ "identifiers", "types and classes", "values with units", "explicit unknowns" ] }, { "id": "stages-and-transitions-q02", "text": "Who or what asserted this about the lifecycle of a narcolepsy, by which method, and when was it true?", "kind": "provenance", "answer_data": [ "authority", "method", "evidence", "event time", "knowledge time" ] }, { "id": "stages-and-transitions-q03", "text": "What may an agent decide or do once the lifecycle of a narcolepsy is known, and what must it refuse?", "kind": "action", "answer_data": [ "permitted actions", "preconditions", "refusals", "escalation" ] } ] } ] }, { "id": "observations-and-status", "name": "Observations and current status", "description": "What is observed about a narcolepsy, how often and by whom.", "findings": [ { "id": "observation-record", "name": "Observation record", "description": "How an observation of a narcolepsy is recorded so that it can be superseded rather than overwritten.", "questions": [ { "id": "observation-record-q01", "text": "What identifies and describes an observation of a narcolepsy, and in what units or vocabulary?", "kind": "definition", "answer_data": [ "identifiers", "types and classes", "values with units", "explicit unknowns" ] }, { "id": "observation-record-q02", "text": "Who or what asserted this about an observation of a narcolepsy, by which method, and when was it true?", "kind": "provenance", "answer_data": [ "authority", "method", "evidence", "event time", "knowledge time" ] }, { "id": "observation-record-q03", "text": "What may an agent decide or do once an observation of a narcolepsy is known, and what must it refuse?", "kind": "action", "answer_data": [ "permitted actions", "preconditions", "refusals", "escalation" ] } ] } ] } ] }, { "id": "definitions-in-contest", "name": "Definitions and who holds them", "description": "What narcolepsy is taken to mean, and by whom.", "rationale": "When a field disagrees about a concept, the disagreement is the content. A model that picks one definition silently destroys the information.", "layers": [ { "id": "competing-definitions", "name": "Competing definitions", "description": "The main readings and the traditions behind them.", "findings": [ { "id": "definition-map", "name": "Definitions and their holders", "description": "Each definition with the school or body that holds it.", "questions": [ { "id": "definition-map-q01", "text": "Which definitions of narcolepsy are in use, and which tradition or body holds each?", "kind": "definition" }, { "id": "definition-map-q02", "text": "What turns on the difference between them in practice?", "kind": "boundary" } ] } ] }, { "id": "operationalisation", "name": "Operationalisation", "description": "How it is measured or applied when it has to be.", "findings": [ { "id": "operational-record", "name": "Measures and proxies", "description": "Instruments and indicators used to stand in for it.", "questions": [ { "id": "operational-record-q01", "text": "How is narcolepsy operationalised or measured in practice, and by what instrument?", "kind": "measurement" }, { "id": "operational-record-q02", "text": "What does that operationalisation leave out, and when does that matter?", "kind": "boundary" } ] } ] } ] }, { "id": "instances-and-use", "name": "Instances, use and consequence", "description": "What counts as an instance of narcolepsy and what follows from calling something that.", "rationale": "Applying a concept is an act with consequences, so a model must say what the label licenses and what it does not.", "layers": [ { "id": "instances", "name": "What counts as an instance", "description": "Clear cases, borderline cases and non-cases.", "findings": [ { "id": "instance-tests", "name": "Tests for an instance", "description": "What would settle whether something falls under it.", "questions": [ { "id": "instance-tests-q01", "text": "What would settle whether something is an instance of narcolepsy?", "kind": "boundary" }, { "id": "instance-tests-q02", "text": "Which borderline cases are argued about, and on what grounds?", "kind": "definition" } ] } ] }, { "id": "consequence", "name": "Consequence of application", "description": "Rights, duties or decisions that follow from the label.", "findings": [ { "id": "consequence-record", "name": "What the label licenses", "description": "What an agent may do once something is classified this way.", "questions": [ { "id": "consequence-record-q01", "text": "What follows practically once something is treated as narcolepsy?", "kind": "action" }, { "id": "consequence-record-q02", "text": "What must an agent not infer from the label alone?", "kind": "action" } ] } ] } ] }, { "id": "provenance-and-evidence", "name": "Provenance, evidence and time", "description": "Where every claim about a narcolepsy came from and when it held.", "rationale": "A claim without a source and a time cannot be superseded, only overwritten, and an agent that overwrites loses the ability to explain itself.", "layers": [ { "id": "source-and-authority", "name": "Source and authority", "description": "Who said it, on what evidence, and how strongly.", "findings": [ { "id": "claim-provenance", "name": "Claim provenance and confidence", "description": "The authority behind each claim about a narcolepsy and how confident it is.", "questions": [ { "id": "claim-provenance-q01", "text": "What identifies and describes a claim about a narcolepsy, and in what units or vocabulary?", "kind": "definition", "answer_data": [ "identifiers", "types and classes", "values with units", "explicit unknowns" ] }, { "id": "claim-provenance-q02", "text": "Who or what asserted this about a claim about a narcolepsy, by which method, and when was it true?", "kind": "provenance", "answer_data": [ "authority", "method", "evidence", "event time", "knowledge time" ] }, { "id": "claim-provenance-q03", "text": "What may an agent decide or do once a claim about a narcolepsy is known, and what must it refuse?", "kind": "action", "answer_data": [ "permitted actions", "preconditions", "refusals", "escalation" ] } ] } ] }, { "id": "time-and-versions", "name": "Time, versions and supersession", "description": "When a claim was true, when it was learnt, and what replaced it.", "findings": [ { "id": "validity-and-supersession", "name": "Validity period and supersession", "description": "How an old claim about a narcolepsy is retired without being erased.", "questions": [ { "id": "validity-and-supersession-q01", "text": "What identifies and describes the validity of a claim about a narcolepsy, and in what units or vocabulary?", "kind": "definition", "answer_data": [ "identifiers", "types and classes", "values with units", "explicit unknowns" ] }, { "id": "validity-and-supersession-q02", "text": "Who or what asserted this about the validity of a claim about a narcolepsy, by which method, and when was it true?", "kind": "provenance", "answer_data": [ "authority", "method", "evidence", "event time", "knowledge time" ] }, { "id": "validity-and-supersession-q03", "text": "What may an agent decide or do once the validity of a claim about a narcolepsy is known, and what must it refuse?", "kind": "action", "answer_data": [ "permitted actions", "preconditions", "refusals", "escalation" ] } ] } ] } ] } ] }, "statistics": { "bundles": 5, "layers": 10, "findings": 12, "questions": 32 } } } }