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Research draft

sarcoma

vr.tr.sarcoma · XCT.STA

Let an agent give general, sourced information about sarcoma, encourage prompt medical review of warning signs, point to specialist centres and support organisations, and avoid personal medical advice or prognosis.

Thing Registry Cross-cutting context

Research draft, second pass

A second pass drafted this model: the structure a model of this thing needs, and what is known about it in the world. The line under this one says how the second half was obtained - researched against sources, or recalled without web access, in which case nothing here was read anywhere and every claim is a lead to verify. Unreviewed either way.

written by Claude from model knowledge without web access - no source was read, every claim is a lead to verify

Researched by: Claude

Purpose and description

Let an agent give general, sourced information about sarcoma, encourage prompt medical review of warning signs, point to specialist centres and support organisations, and avoid personal medical advice or prognosis.

A group of rare cancers that arise in connective tissues such as bone, cartilage, fat, muscle, blood vessels and fibrous tissue, divided broadly into soft tissue sarcomas and bone sarcomas, with many subtypes such as liposarcoma, fibrosarcoma and osteosarcoma.

What it is for: A group of cancers relevant to diagnosis, specialist care and support.

It can be recognise signs that warrant medical review; find general information on sarcoma types; find specialist sarcoma centres; find patient and family support.

Distinguishing features

Connective tissue origin

Rare

Many subtypes

Best treated at specialist centres

What it looks like

Often a lump or swelling that may grow, or bone pain; diagnosed by imaging and biopsy.

How it is recognised

Lumps that grow or are deep

Persistent bone pain or swelling

Carcinomas arise in epithelial tissue

Related models

is a kind of - category

cancer

arises in - tissue

connective tissue

is treated at - care

specialist sarcoma centre

is classified by - classification

WHO Classification of Tumours

In practice

Families and kinds

soft tissue sarcomas

bone sarcomas such as osteosarcoma and Ewing sarcoma

gastrointestinal stromal tumours

Kaposi sarcoma

paediatric sarcomas

Standards and regulation

WHO Classification of Soft Tissue and Bone Tumours

National suspected cancer referral guidelines

ESMO sarcoma guidelines

Failure modes and hazards

Delayed diagnosis of a growing lump

Agents giving prognosis or treatment advice

Unproven alternative treatments

Also called

lipofibromatosismyxoid liposarcomafibrosarcomaliposarcoma metastaticmetastatic fibrosarcomametastatic epithelioid sarcomamast cell sarcomaliposarcomamyxofibrosarcomasmall cell sarcomaepithelioid sarcomamyxosarcomaovarian endodermal sinus tumorcellular myxoid liposarcomamyxoid liposarcoma of the ovarydesmoplastic small-round-cell tumorpseudosarcomatous fibromatosisdermatofibrosarcoma protuberansfibromatosisconventional fibrosarcomapediatric fibrosarcomakidney fibrosarcomabreast fibrosarcomaheart fibrosarcomacentral nervous system fibrosarcomasmall bowel fibrosarcomaliver fibrosarcomanon-metastatic fibrosarcomaovarian fibrosarcomaGiant-cell fibroblastomabone sarcomachildhood endodermal sinus tumorpediatric liposarcomapediatric epithelioid sarcomacentral nervous system endodermal sinus tumorendodermal sinus tumormalignant hemangiomamalignant skin fibrous histiocytomaskin sarcomasuperficial fibromatosis

+86

Where this came from

wikidata · CC0 1.0

Source repository Registry entry point

Drafted structure

Bundle to layer to finding to question, as the second pass will find it: 4 bundles · 8 layers · 8 findings · 16 questions.

Signs When to seek review.

Early review matters.

Lump

Warning signs.

Lump

Warning signs.

  1. Is there a lump that is growing, larger than a golf ball, deep or painful, or bone pain that persists? boundary
  2. Should the person book a prompt appointment with a doctor? action

Urgent

Urgent symptoms.

Urgent

Urgent symptoms.

  1. Are there severe symptoms such as sudden severe pain or a fracture after minor injury? boundary
  2. Should urgent medical help be sought now? action
Information General facts.

Sourced information only.

Types

Subtypes.

Types

Subtypes.

  1. What do cancer charities or health services say about this sarcoma subtype? provenance
  2. How is it diagnosed in general terms? definition

Personal

Personal questions.

Personal

Personal advice limits.

  1. Is the user asking about their own diagnosis, treatment or prognosis? boundary
  2. How should the agent refer them to their specialist team? action
Care Specialist services.

Specialist care matters.

Centres

Specialist centres.

Centres

Specialist centres.

  1. Which specialist sarcoma centres serve this region? provenance
  2. How are referrals made? provenance

Trials

Clinical trials.

Trials

Clinical trials.

  1. Which official registries list sarcoma clinical trials? provenance
  2. Who can discuss eligibility? action
Support Patients and families.

Support helps.

Charities

Support organisations.

Charities

Support organisations.

  1. Which charities provide sarcoma information and helplines? provenance
  2. Do they support families and carers? provenance

Distress

Emotional support.

Distress

Emotional support.

  1. Is the person very distressed or in crisis? boundary
  2. Which crisis line or psychological support service should be offered? action

What the second pass must settle

  • Should subtypes be separate entries?
  • How should specialist centres be linked?
  • How should classification updates be tracked?
Draft as JSON