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Research draft

autism

vr.tr.autism · XCT.STA

Let an agent explain autism respectfully within medical and neurodiversity frameworks, use language preferred by autistic people, describe assessment and support with attribution, address misinformation, and route urgent needs to care.

Thing Registry Cross-cutting context

Research draft, second pass

A second pass drafted this model: the structure a model of this thing needs, and what is known about it in the world. The line under this one says how the second half was obtained - researched against sources, or recalled without web access, in which case nothing here was read anywhere and every claim is a lead to verify. Unreviewed either way.

written by Claude from model knowledge without web access - no source was read, every claim is a lead to verify

Researched by: Claude

Purpose and description

Let an agent explain autism respectfully within medical and neurodiversity frameworks, use language preferred by autistic people, describe assessment and support with attribution, address misinformation, and route urgent needs to care.

A neurodevelopmental condition and neurotype characterised by differences in social communication, sensory processing and patterns of interest and behaviour, present from early childhood and varying widely in presentation and support needs across the autism spectrum; autism is understood within both medical and neurodiversity frameworks, is not a disease to be cured, and is supported through understanding, accommodation and, where wanted, evidence-based services.

What it is for: A neurodevelopmental condition and neurotype.

It can be explain autism respectfully; describe assessment and support pathways; address misinformation such as cure claims; support autistic people and families.

Distinguishing features

Neurodevelopmental

Spectrum

Lifelong

Neurodiversity framing

What it looks like

Not physical; differences in communication, sensory processing and behaviour.

How it is recognised

Neurodevelopmental, lifelong

Spectrum of presentations

Not caused by vaccines or parenting

Related models

is a kind of - category

neurotype

is a kind of - category

autism spectrum disorder

is related to - framework

neurodiversity

is related to - a different neurological condition sometimes confused

agnosia

In practice

Families and kinds

autism with varying support needs

autism with and without intellectual disability

nonverbal or minimally speaking autism

syndromic autism linked to genetic conditions

autism across the lifespan including older adults

Standards and regulation

Diagnostic criteria in ICD and DSM

Disability rights and anti-discrimination law

Guidance on language from autistic organisations

Failure modes and hazards

Promoting cures or harmful treatments

Stigmatising language

Agents diagnosing

Also called

nonverbal autismclassic autismhigh-functioning autismautism curesyndromic autismautism in older adultsautistic savantlow-functioning autismregressive autismautism in adulthoodprofound autism

Where this came from

wikidata · CC0 1.0

Drafted structure

Bundle to layer to finding to question, as the second pass will find it: 4 bundles · 8 layers · 8 findings · 16 questions.

Respect Language and framing.

Neurodiversity.

Language

Preferred language.

Language

Language.

  1. Which language do autistic people and their organisations prefer, such as identity-first language, and which terms are outdated? provenance
  2. Is the request framed respectfully? boundary

Frameworks

Medical and neurodiversity views.

Frameworks

Frameworks.

  1. How do medical and neurodiversity frameworks describe autism, and how are both presented with attribution? provenance
  2. What do autistic self-advocates say about cure narratives? provenance
Support Assessment and support.

Pathways.

Assessment

Getting assessed.

Assessment

Assessment.

  1. How is autism assessed in children and adults here, and how can an assessment be sought? provenance
  2. Is the user seeking a diagnosis, which needs a qualified professional? boundary

Services

Support and accommodations.

Services

Support.

  1. Which supports, accommodations and services are evidence-based and wanted by autistic people, according to guidelines and autistic-led organisations? provenance
  2. Which rights to accommodation apply at school and work? provenance
Misinformation Myths and harms.

Safety.

Cures

Cure claims.

Cures

Cure claims.

  1. Is the request about a so-called autism cure or harmful intervention, and what do health authorities say about such claims? boundary
  2. Which interventions are documented as harmful? provenance

Causes

Causes and myths.

Causes

Causes.

  1. What does research say about the causes of autism, and which myths such as vaccine claims are refuted? provenance
  2. Is the presentation non-deterministic? boundary
Life Across the lifespan.

Community.

Lifespan

Autism across ages.

Lifespan

Lifespan.

  1. What is known about autism in adults and older adults, and what supports exist beyond childhood? provenance
  2. How are late diagnoses experienced? provenance

Crisis

Urgent needs.

Crisis

Crisis.

  1. Is an autistic person in crisis or at risk now? boundary
  2. Which services and autistic-led organisations can help? provenance

What the second pass must settle

  • Should support needs levels be modelled?
  • How should autistic-led organisations be linked?
  • How should misinformation be handled?