{ "vercy": "1.0-draft", "publication": { "status": "research-draft", "adjudicationStatus": "unreviewed", "publishableCanonical": false, "generatedAt": "2026-09-11T10:31:22Z", "providers": [ "Claude" ], "breadth": "written by Claude from model knowledge without web access - no source was read, every claim is a lead to verify", "pass": 2, "wave": 1, "engine": "claude", "enrichment": { "pass": 3, "engine": "claude", "producedAt": "2026-10-05T16:30:00Z", "ingestedAt": "2026-10-05T13:26:04+00:00", "fields": [ "agent_conduct", "ethics", "owners" ] }, "gate": { "passed": true, "version": "1.0", "at": "2026-10-06T19:51:55+00:00", "evidence": [ "completeness 1.00", "sense: Wikidata description", "2 live sources", "review by codex: pass" ] } }, "metaModel": { "id": "THING-Q1779300", "registryId": "vr.tr.connective-tissue-disease", "name": "connective tissue disease", "version": "0.2.0-wave.1", "entryKind": "thing", "family": "Thing Registry", "domain": [ "XCT.STA" ], "status": "research-draft" }, "canonicalUrl": "https://ver.cy/models/thing/q1779300/", "model": { "registry_id": "vr.tr.connective-tissue-disease", "name": "connective tissue disease", "purpose": "Let an agent explain connective tissue diseases in general terms and point to specialist care and patient organisations, without diagnosis or personal medical advice.", "definition": "A disease affecting connective tissues, which support and connect other tissues and organs, including autoimmune conditions such as lupus and systemic sclerosis, heritable disorders such as Ehlers-Danlos and Marfan syndromes, and tumours of connective tissue such as sarcomas.", "what_it_is_for": "A broad health category relevant to rheumatology, genetics and oncology.", "affordances": [ "explain categories in general terms", "find specialist services such as rheumatology", "find patient support organisations", "recognise when urgent care is needed" ], "distinguishing_features": [ "Affects supporting tissues", "Very diverse causes", "Often chronic", "Requires specialist assessment" ], "appearance": "Signs vary widely, from joint and skin changes to internal organ involvement.", "visual_identification": [ "Autoimmune, heritable and neoplastic groups", "Specialties such as rheumatology and genetics", "Many conditions need specialist diagnosis" ], "physical_properties": [], "families_and_kinds": [ "autoimmune connective tissue diseases", "heritable connective tissue disorders", "soft tissue and bone tumours", "mixed and overlap conditions" ], "related_models": [ { "relation": "is a kind of", "target": "musculoskeletal disorder", "why": "category" }, { "relation": "affects", "target": "connective tissue", "why": "tissue" }, { "relation": "is treated by", "target": "rheumatology and genetics services", "why": "care" }, { "relation": "includes", "target": "systemic lupus erythematosus", "why": "example" } ], "identifiers": [ { "scheme": "ICD-11", "value_or_pattern": "multiple codes across chapters", "note": "classification" } ], "standards_and_regulation": [ "Clinical classification criteria", "Rare disease policies" ], "failure_modes_and_hazards": [ "Agents diagnosing conditions", "Delaying care for serious symptoms", "Unproven treatments" ], "in_scope": [], "out_of_scope": [], "characteristics": [], "agent_conduct": { "may": [ "Explain connective tissue diseases in general terms from reliable medical sources.", "Help a patient keep a record of symptoms and appointments they choose to share." ], "must_not": [ "Diagnose a connective tissue disease or rule one out for a specific person.", "Recommend starting, stopping or changing immunosuppressive or other treatment.", "Promote unproven cures to people with chronic autoimmune illness.", "Disclose a person's diagnosis to employers, insurers or others without consent." ], "requires_human": [ "Any treatment decision, which belongs to the patient and their clinician." ] }, "ethics": { "considerations": [ "These diseases are often invisible and slow to diagnose, so patients are disbelieved or dismissed.", "Lupus and similar conditions affect women and some ethnic groups more, raising equity concerns in care." ], "affected_parties": [ "Patients", "Their families and carers", "Clinicians" ] }, "owners": { "steward": "The patient, with the treating clinician; health records are held by the care provider.", "master_systems": [ "Patient health records", "Disease registries" ] } }, "sources": [ { "id": "wikidata", "title": "Wikidata item Q1779300: connective tissue disease", "url": "https://www.wikidata.org/wiki/Q1779300", "url_status": "live", "what_it_supports": "identity and sense of the item", "checked_by": "wikidata-api" }, { "id": "wikipedia-en", "title": "Wikipedia: Connective tissue disease", "url": "https://en.wikipedia.org/wiki/Connective_tissue_disease", "url_status": "live", "what_it_supports": "general description of the item", "checked_by": "wikidata-api sitelink" } ], "structure": { "bundles": [ { "id": "urgent", "name": "Urgent", "description": "Serious symptoms.", "rationale": "Emergencies come first.", "layers": [ { "id": "signs", "name": "Signs", "description": "Urgent signs.", "findings": [ { "id": "signs-finding", "name": "Signs", "description": "Urgent signs.", "questions": [ { "text": "Are there severe symptoms such as chest pain, breathlessness or sudden weakness?", "kind": "boundary" }, { "text": "Which emergency service should be contacted?", "kind": "action" } ] } ] }, { "id": "diagnosis", "name": "Diagnosis", "description": "Clinicians.", "findings": [ { "id": "diagnosis-finding", "name": "Diagnosis", "description": "Diagnosis limit.", "questions": [ { "text": "Is the user asking the agent to diagnose a condition?", "kind": "boundary" }, { "text": "How should they be referred to a clinician?", "kind": "action" } ] } ] } ] }, { "id": "categories", "name": "Categories", "description": "General information.", "rationale": "Categories help orientation.", "layers": [ { "id": "types", "name": "Types", "description": "Groups.", "findings": [ { "id": "types-finding", "name": "Types", "description": "Types.", "questions": [ { "text": "Which group of connective tissue disease is being discussed?", "kind": "definition" }, { "text": "Which reliable sources describe it?", "kind": "provenance" } ] } ] }, { "id": "genetics", "name": "Genetics", "description": "Heritable disorders.", "findings": [ { "id": "genetics-finding", "name": "Genetics", "description": "Heritable disorders.", "questions": [ { "text": "Is the condition inherited, in general terms?", "kind": "provenance" }, { "text": "Is genetic counselling available?", "kind": "provenance" } ] } ] } ] }, { "id": "care", "name": "Care", "description": "Services.", "rationale": "Specialists manage care.", "layers": [ { "id": "specialists", "name": "Specialists", "description": "Referral.", "findings": [ { "id": "specialists-finding", "name": "Specialists", "description": "Specialist care.", "questions": [ { "text": "Which specialist service manages this condition here?", "kind": "provenance" }, { "text": "How is a referral made?", "kind": "action" } ] } ] }, { "id": "treatments", "name": "Treatments", "description": "Evidence.", "findings": [ { "id": "treatments-finding", "name": "Treatments", "description": "Treatments.", "questions": [ { "text": "Which treatments are recommended by clinical guidelines, in general terms?", "kind": "provenance" }, { "text": "Are unproven treatments being promoted?", "kind": "boundary" } ] } ] } ] }, { "id": "living", "name": "Living", "description": "Support.", "rationale": "Support matters.", "layers": [ { "id": "organisations", "name": "Organisations", "description": "Patient groups.", "findings": [ { "id": "organisations-finding", "name": "Organisations", "description": "Patient organisations.", "questions": [ { "text": "Which patient organisations support people with this condition?", "kind": "provenance" }, { "text": "What resources do they offer?", "kind": "provenance" } ] } ] }, { "id": "work", "name": "Work", "description": "Adjustments.", "findings": [ { "id": "work-finding", "name": "Work", "description": "Work and school.", "questions": [ { "text": "What adjustments or rights apply at work or school?", "kind": "provenance" }, { "text": "Who can advise?", "kind": "provenance" } ] } ] } ] } ] }, "openQuestions": [ "Should each disease be a separate entry?", "How should patient organisations be localised?", "How should alias lists be curated?" ], "statistics": { "bundles": 4, "layers": 8, "findings": 8, "questions": 16 } }