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Research draft

ovarian cancer

vr.tr.ovarian-cancer · XCT.STA

Let an agent give general, accurate information on ovarian cancer, encourage timely assessment of persistent symptoms, explain diagnosis and treatment pathways in general terms, and point to specialist care and support without individual medical advice.

Thing Registry Cross-cutting context

Research draft, second pass

A second pass drafted this model: the structure a model of this thing needs, and what is known about it in the world. The line under this one says how the second half was obtained - researched against sources, or recalled without web access, in which case nothing here was read anywhere and every claim is a lead to verify. Unreviewed either way.

written by Claude from model knowledge without web access - no source was read, every claim is a lead to verify

Researched by: Claude

Purpose and description

Let an agent give general, accurate information on ovarian cancer, encourage timely assessment of persistent symptoms, explain diagnosis and treatment pathways in general terms, and point to specialist care and support without individual medical advice.

A cancer arising in the ovaries or, as now understood for many high-grade serous cases, in the fallopian tubes, including epithelial carcinomas, germ cell tumours and stromal tumours, often diagnosed late because early symptoms are vague; it is treated with surgery and chemotherapy and, in some cases, targeted therapies, and risk is raised by inherited variants such as BRCA1 and BRCA2.

What it is for: A cancer requiring specialist diagnosis, treatment and support.

It can be explain symptoms that warrant assessment; describe types and stages in general terms; explain treatment pathways and genetic testing; find specialist centres and patient organisations.

Distinguishing features

Ovarian or tubal origin

Several histological types

Often late diagnosis

Hereditary risk in some families

What it looks like

Not physical as a concept; a diagnosis based on imaging, blood tests and pathology.

How it is recognised

Persistent bloating, pelvic pain, early fullness and urinary changes

Diagnosed by imaging, CA-125 and biopsy

Ovarian cysts are usually benign

Related models

is a kind of - category

ovarian neoplasm

is a kind of - category

endocrine gland cancer

is treated by - services

health care

is related to - organ of origin

sex organ

In practice

Families and kinds

epithelial ovarian cancer including high-grade and low-grade serous

mucinous and endometrioid carcinomas

germ cell tumours including dysgerminoma

sex cord-stromal tumours

paediatric ovarian tumours

Standards and regulation

Clinical guidelines from oncology societies such as ESMO and NCCN

National cancer pathways and referral standards

Genetic testing guidelines for BRCA variants

Failure modes and hazards

Delayed diagnosis

Agents giving individual medical advice

Unproven treatments

Also called

ovarian dermoid cyst with secondary tumorovarian germ cell neoplasmpediatric ovarian germ cell tumorpediatric ovarian dysgerminomaovarian mucinous neoplasmlow-grade serous carcinomasurface epithelial-stromal tumorbenign ovarian mucinous tumorovarian serous tumormalignant ovarian germ cell neoplasmdysgerminomadermoid cyst of ovarymalignant ovarian cystovarian melanomaovarian malignant mesotheliomaovary sarcomaovarian Wilms' cancerovary neuroendocrine neoplasmovarian clear cell malignant adenofibromarecurrent ovarian epithelial cancerhereditary site-specific ovarian cancer syndromeprimary peritoneal serous/papillary carcinomamalignant Sertoli-leydig cell tumor of ovarygranulosa cell tumourovarian mucinous cystic tumor with mural nodulesovarian mucinous cystic tumor associated with pseudomyxoma peritoneimalignant ovarian mucinous tumorovarian serous carcinomamalignant ovarian surface epithelial-stromal neoplasmovarian squamous cell neoplasmovarian endometrial cancerovarian papillary neoplasmfamiliar ovarian carcinomaborderline epithelial tumor of ovaryborderline ovarian serous neoplasm with microinvasionpineal dysgerminomadysgerminoma of ovaryovarian dermoid cyst with adenocarcinomaovarian dermoid cyst with sebaceous adenomaovarian dermoid cyst with secondary sebaceous tumor

+8

Where this came from

wikidata · CC0 1.0

Source repository Registry entry point

Drafted structure

Bundle to layer to finding to question, as the second pass will find it: 4 bundles · 8 layers · 8 findings · 16 questions.

Symptoms Early assessment.

Persistent symptoms need checking.

Warning

Symptoms to check.

Warning

Symptoms.

  1. Are there persistent symptoms such as bloating, pelvic pain, early fullness or urinary frequency lasting weeks? boundary
  2. Should the person see a doctor for assessment now? action

Urgent

Urgent situations.

Urgent

Urgent situations.

  1. Are there urgent symptoms such as severe pain, vomiting or breathlessness? boundary
  2. Should emergency care be sought? action
Understand The disease.

General information.

Types

Types and stages.

Types

Types.

  1. What type and stage is being discussed, in general terms? definition
  2. Is the user asking about their own diagnosis or results? boundary

Risk

Risk factors.

Risk

Risk factors.

  1. What do health authorities say about risk factors, including BRCA variants and family history? provenance
  2. Who is eligible for genetic testing? provenance
Treatment Care pathway.

Specialist care.

Pathway

Diagnosis and treatment.

Pathway

Pathway.

  1. How is ovarian cancer diagnosed and treated, according to guidelines, in general terms? provenance
  2. Which questions should be asked of the oncology team? action

Trials

Clinical trials.

Trials

Trials.

  1. Which trials are recruiting, according to registries? provenance
  2. How can a patient discuss trials with their team? action
Support Living with it.

Support helps.

Organisations

Patient groups.

Organisations

Patient groups.

  1. Which patient organisations support people with ovarian cancer here? provenance
  2. Which services do they offer? provenance

Care

Supportive care.

Care

Supportive care.

  1. What supportive and palliative care is available? provenance
  2. How can carers be supported? provenance

What the second pass must settle

  • Should each histological type be a separate entry?
  • How should guidelines be linked?
  • How should support organisations be localised?
Draft as JSON