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Research draft

epilepsy

vr.tr.epilepsy · XCT.STA

Let an agent give neutral, non-diagnostic information about epilepsy, seizure first aid first, and route people to health professionals and support organisations.

Thing Registry Cross-cutting context

Research draft, second pass

A second pass drafted this model: the structure a model of this thing needs, and what is known about it in the world. The line under this one says how the second half was obtained - researched against sources, or recalled without web access, in which case nothing here was read anywhere and every claim is a lead to verify. Unreviewed either way.

written by Claude from model knowledge without web access - no source was read, every claim is a lead to verify

Researched by: Claude

Purpose and description

Let an agent give neutral, non-diagnostic information about epilepsy, seizure first aid first, and route people to health professionals and support organisations.

A neurological condition characterised by a tendency to have recurrent, unprovoked seizures caused by abnormal electrical activity in the brain; there are many types and causes, and most people can control seizures with treatment.

What it is for: A recognised medical condition diagnosed and treated by health professionals.

It can be give seizure first aid; call emergency services when needed; seek specialist assessment; find epilepsy support organisations.

Distinguishing features

Recurrent unprovoked seizures

Many types and causes

Usually treatable

Often stigmatised

What it looks like

Seizures vary: brief absences, unusual sensations or movements, or convulsions with loss of consciousness.

How it is recognised

Seizure types such as focal or generalised

Diagnosed with history, EEG and imaging

A single seizure is not always epilepsy

Related models

is a kind of - category

neurological condition

affects - organ

brain

is treated by - professional

neurologist

is supported by - support

epilepsy organisations

In practice

Families and kinds

focal epilepsies

generalised epilepsies

childhood epilepsy syndromes

epilepsy with sleep-related seizures

drug-resistant epilepsy

Identifiers

ICD-11 8A60-8A6Z epilepsy or seizures

Standards and regulation

ILAE classification

NICE guideline NG217 epilepsies

Driving licence rules for epilepsy

Failure modes and hazards

Restraining a person or putting objects in their mouth during a seizure

Not calling for help for a long seizure

Stopping medicines without medical advice

Stigmatising language

Also called

dysembryoplastic neuroepithelial tumouranti-NMDA receptor encephalitisalternative psychosisNocturnal epilepsyfocal nocturnal epileptiform activityIctal bradycardiageneralized epilepsyfocal epilepsyintractable epilepsycomplex partial seizureatonic seizurepost-traumatic epilepsyidiopathic generalized epilepsy 9idiopathic generalized epilepsy 5idiopathic generalized epilepsy 13idiopathic generalized epilepsy 3idiopathic generalized epilepsy 15idiopathic generalized epilepsy 12idiopathic generalized epilepsy 4idiopathic generalized epilepsy 2idiopathic generalized epilepsy 14idiopathic generalized epilepsy 7idiopathic generalized epilepsy 11generalized epilepsy with febrile seizures plusgeneralized nonconvulsive epilepsy diseasegeneralized convulsive epilepsychildhood onset epileptic encephalopathyepilepsy, idiopathic generalized, susceptibility to, 8epilepsy, idiopathic generalized, susceptibility to, 10Idiopathic generalized epilepsyJeavons syndromesimple partial seizureextratemporal epilepsypartial motor epilepsypartial sensory epilepsyMalignant Migrating Partial Seizures in Infancypartial epilepsy with impairment of consciousnessGelastic seizurefamilial partial epilepsyJacksonian seizure

+43

Where this came from

wikidata · CC0 1.0

Source repository Registry entry point

Also registered as vr.tr.epilepsy

Drafted structure

Bundle to layer to finding to question, as the second pass will find it: 4 bundles · 8 layers · 8 findings · 16 questions.

First aid During a seizure.

First aid comes first.

During

Keep safe.

During

Seizure first aid.

  1. Is the person kept safe from injury, not restrained, with nothing put in their mouth? action
  2. Is the time the seizure started noted? action

Emergency

When to call.

Emergency

When to call for help.

  1. Has the seizure lasted more than five minutes, or is it the first seizure, or is there injury or breathing difficulty? boundary
  2. Should emergency services be called now? action
Care Diagnosis and treatment.

Care is professional.

Assessment

Specialist.

Assessment

Assessment.

  1. How can someone get assessed after a seizure? action
  2. What tests might be used? definition

Treatment

Options.

Treatment

Treatment.

  1. Which treatments do clinical guidelines describe? provenance
  2. Who decides with the patient? boundary
Living with epilepsy Daily life.

Many people live well.

Safety

Everyday risks.

Safety

Everyday safety.

  1. What everyday safety measures do epilepsy organisations suggest? provenance
  2. Are there rules on driving? provenance

Rights

Work and school.

Rights

Rights.

  1. What adjustments at work or school may be available? boundary
  2. Who can advise? action
Information Understanding.

Accurate information reduces stigma.

Facts

Reliable information.

Facts

General information.

  1. What do reliable health sources say about epilepsy? provenance
  2. Which myths are common? boundary

Language

Respect.

Language

Respectful language.

  1. Is respectful, person-first language used? boundary
  2. Is control with treatment described accurately? boundary

What the second pass must settle

  • Should seizure types be separate entries?
  • How should emergency numbers be localised?
  • How should driving rules be localised?
Draft as JSON