Published
epilepsy
vr.tr.epilepsy · thing-q41571
Let an agent give neutral, non-diagnostic information about epilepsy, seizure first aid first, and route people to health professionals and support organisations.
Thing Registry Cross-cutting context XCT.STA
Bundle → Layer → Finding → QuestionsClassifiersWhat it isWhy it existsDistinguishing featuresWhat robots and AI may and may not doMoral aspectsOwnersLinks to other meta-modelsIdentity and identifiersDirect propertiesRecognitionCapabilities and actionsHazards and failure modesStandards and interfacesContext of useSources
Bundle → Layer → Finding → Questions Filled
4 bundles · 8 layers · 8 findings · 16 questions
First aid During a seizure.
During
Keep safe.
During
Seizure first aid.
- Is the person kept safe from injury, not restrained, with nothing put in their mouth? action
- Is the time the seizure started noted? action
Emergency
When to call.
Emergency
When to call for help.
- Has the seizure lasted more than five minutes, or is it the first seizure, or is there injury or breathing difficulty? boundary
- Should emergency services be called now? action
Care Diagnosis and treatment.
Assessment
Specialist.
Assessment
Assessment.
- How can someone get assessed after a seizure? action
- What tests might be used? definition
Treatment
Options.
Treatment
Treatment.
- Which treatments do clinical guidelines describe? provenance
- Who decides with the patient? boundary
Living with epilepsy Daily life.
Safety
Everyday risks.
Safety
Everyday safety.
- What everyday safety measures do epilepsy organisations suggest? provenance
- Are there rules on driving? provenance
Rights
Work and school.
Rights
Rights.
- What adjustments at work or school may be available? boundary
- Who can advise? action
Information Understanding.
Facts
Reliable information.
Facts
General information.
- What do reliable health sources say about epilepsy? provenance
- Which myths are common? boundary
Language
Respect.
Language
Respectful language.
- Is respectful, person-first language used? boundary
- Is control with treatment described accurately? boundary
Classifiers Filled
- Family
- Thing Registry
- Category
- Cross-cutting context
- Entry kind
- thing
- Plane
- XCT
- Domain
- XCT.STA
- Other names and narrower kinds
- dysembryoplastic neuroepithelial tumour, anti-NMDA receptor encephalitis, alternative psychosis, Nocturnal epilepsy, focal nocturnal epileptiform activity, Ictal bradycardia, generalized epilepsy, focal epilepsy, intractable epilepsy, complex partial seizure, atonic seizure, post-traumatic epilepsy
What it is Filled
A neurological condition characterised by a tendency to have recurrent, unprovoked seizures caused by abnormal electrical activity in the brain; there are many types and causes, and most people can control seizures with treatment.
Why it exists Filled
Let an agent give neutral, non-diagnostic information about epilepsy, seizure first aid first, and route people to health professionals and support organisations.
Distinguishing features Filled
- Recurrent unprovoked seizures
- Many types and causes
- Usually treatable
- Often stigmatised
What robots and AI may and may not do Filled
Must not
- Diagnose epilepsy or change anti-seizure medicines without a clinician.
- Put anything in a seizing person's mouth or advise restraining them.
- Disclose a person's epilepsy to employers or others without consent.
- Display rapidly flashing content without warnings.
Only with a human decision
- Decisions about driving or work that depend on seizure control require human involvement.
May
- Explain epilepsy and seizure first aid from recognised medical guidance.
- Remind a person of medicines and appointments on their request.
- Call emergency services for a suspected seizure emergency without waiting for prior human approval.
Moral aspects Filled
- People with epilepsy face stigma and discrimination at work and in daily life.
- Prolonged seizures are emergencies; wrong first aid causes harm.
Who is affected
- People with epilepsy
- Families and carers
- Bystanders giving first aid
Owners Filled
Steward
The patient, with their clinicians.
Links to other meta-models Filled
parent
- Q576349 - registry parent class
related
- neurological condition - category
- brain - organ
- neurologist - professional
- epilepsy organisations - support
What else AI and robots need to interact with it Filled
Identity and identifiers required Filled
- Vercy registry: vr.tr.epilepsy
- Wikidata: Q41571 (https://www.wikidata.org/wiki/Q41571)
- ICD-11: 8A60-8A6Z epilepsy or seizures
Direct properties not applicable Not applicable
Not applicable
Plane XCT: no invented physical properties.
Recognition optional Filled
- Seizure types such as focal or generalised
- Diagnosed with history, EEG and imaging
- A single seizure is not always epilepsy
- Seizures vary: brief absences, unusual sensations or movements, or convulsions with loss of consciousness.
Capabilities and actions required Filled
- give seizure first aid
- call emergency services when needed
- seek specialist assessment
- find epilepsy support organisations
Hazards and failure modes required Filled
- Restraining a person or putting objects in their mouth during a seizure
- Not calling for help for a long seizure
- Stopping medicines without medical advice
- Stigmatising language
Standards and interfaces required Filled
- ILAE classification
- NICE guideline NG217 epilepsies
- Driving licence rules for epilepsy
Context of use required Filled
- A recognised medical condition diagnosed and treated by health professionals.
- focal epilepsies
- generalised epilepsies
- childhood epilepsy syndromes
- epilepsy with sleep-related seizures
- drug-resistant epilepsy
Sources Filled
- Wikidata item Q41571: epilepsy - identity and sense of the item
- Wikipedia: Epilepsy - general description of the item
Open questions
- Should seizure types be separate entries?
- How should emergency numbers be localised?
- How should driving rules be localised?
Machine files
Provenance
thing registry research (pass 2) · unreviewed
Built from: models/things/publications/thing-q41571/spec.json